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Agatha vs. extremely rare and severe immune deficiency

Agatka has been struggling for health since birth. She was born, as a premature baby at 35 weeks gestation.
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SCID DNA ligase deficiency I
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Highlights

  • Purpose of the collection
    Costs of ongoing treatment and specialized tests, travel to the hospital.
  • Diagnosis
    SCID DNA ligase deficiency I
  • Age of the Ward
    5 years
  • Location
    Wroclaw
4,370.00 PLN(15%)
Still short of the goal: 25,630 PLN
Supported by: 3 people
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Highlights

  • Purpose of the collection
    Costs of ongoing treatment and specialized tests, travel to the hospital.
  • Diagnosis
    SCID DNA ligase deficiency I
  • Age
    5 years
  • Location
    Wroclaw

Update

Agatha is fighting against excess iron in her body❗. Agatha's results improved significantly after her second transplant, and she no longer requires blood transfusions for six months. This is great news, although it doesn't mean the end of treatment yet. Our Warrior still has to come with her parents for check-ups, which take place once a month. Previously, Agatha needed monthly blood lupus, which she had to undergo regularly over a period of three years. This caused a large amount of iron to accumulate in our little Heroine's body. Removal of the excess iron will not happen on its own, so the girl must now take an iron chelating drug. We do not know what effect this will have and how Agatha's body will react to the new drug, or how long it will take to take it. "However, we hope and believe that now everything will go in the right direction and in time Agatka will return to complete health," she added. - Agatka's mom Despite the tremendous difficulties, Agatka remains in good spirits and believes that she will soon begin a new stage in her life - cancer-free. Let's help this brave Warrior take the next steps in that direction! July 26, 2024

Explore the history of

She immediately had to have a blood transfusion because of her low hemoglobin.

After several months of searching for the cause of such low blood test results, after many stays in hospitals ("Cape of Hope" in Wroclaw and CZD in Warsaw), doctors finally made a diagnosis. Agatka suffers from SCID DNA ligase I deficiency (severe combined immunodeficiency).

There are only 6 cases in the world with this variant of the disease. In Poland, Agatka is the only "case". The only way to cure the girl turned out to be a bone marrow transplant. In November 2019, an unrelated donor was found, and after Agatka returned from the CZD in Warsaw to the "Cape of Hope" in Wroclaw, the girl underwent megachemotherapy and a bone marrow transplant. She was a 4-month-old baby at the time.

After a short time, it turned out that the hemoglobin continued to drop, and for the next three years Agatka had to be transfused with blood every month. Professors from the "Cape of Hope" consulted repeatedly with specialists in medical centers around the world and decided that another bone marrow transplant was necessary. In January 2024, Agatka returned with her parents to the hospital in Wroclaw. She once again underwent megachemotherapy and a bone marrow transplant.

She was finally able to go home, although she still doesn't have the opportunity to live like an average 4.5-year-old. She often comes with her parents to "Cape of Hope" for check-ups. Agatka still has many visits to various specialists ahead of her.

The health of this brave little girl is still a great unknown.

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Donate 1,5% tax

Your e-PIT is the easiest way to settle your taxes. The IRS pre-fills your tax returns, and you can verify, approve or correct them.

  • Step 1 - log in to the e-Tax Office and use the e-PIT service.
  • Step 2 - in the PIT return form, click on Select an organization.
  • Step 3 - in the list of organizations, search for Cancer Fighters Foundation or enter the KRS number 0000581036.
  • Step 4 - in the field with the specific goal of 1.5%, indicate the Ward by entering the following data:
  • KRS No.
    0000581036
  • Specific objective
    Agata Wawrów

Contributions and words of support

Michael
May 13, 2026
PLN 30.00
Susanna
April 26, 2026
Good luck, and stay healthy!
20.00 00zł
Foundation
15 / 05 / 2025
Donor funds raised on the Cancer Free site
PLN 4,320.00
Foundation
15 / 05 / 2025
Donor funds raised on the Cancer Free site
PLN 4,320.00
Michael
May 13, 2026
PLN 30.00
Susanna
April 26, 2026
Good luck, and stay healthy!
20.00 00zł
4,370.00 PLN(15%)
Still short of the goal: 25,630 PLN
Supported by: 3 people
I help

Share

collection

Set up

piggy bank

Promote the collection

Download and share materials

Donate 1.5% of your tax

Remember, it doesn't cost anything

Download QR code

Collection always at hand

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