PLN 1,000 (3%)Shortfall: PLN 29,000
Idiopathic thrombocytosis❗ Paulinka faces pain and difficult diagnosis❗
Highlights
Update
Explore the history of
Everyday life filled with fear
The headaches, although brief, were so severe that they could completely disrupt her day. They were accompanied by stomach and leg joint pain, which increased rapidly and without warning. When they first appeared in May 2024, there was no indication of how quickly they would change Paulinka's life.
The blood count results revealed a picture that immediately alarmed the doctors. The platelet count had risen to one million seven hundred thousand.
The girl was taken to a hospital in Wałbrzych, where the abnormalities were confirmed and she was referred to Przylądek Nadziei (Cape of Hope) in Wrocław. There, the diagnostic process began, which continues to this day.
Bone marrow was collected, an MRI scan of the head was performed, morphological tests were carried out, and specialist consultations were held. The MRI scan revealed a narrowing of the right cerebral artery. In addition, the detection of Lyme disease meant that doctors had to rule out the possibility of it affecting the nervous system. Each test therefore raises further questions about the direction of further treatment.
"The hardest part is waiting. You want to know anything, just so you can move forward," says Mom.
Life between home and hospital
Paulinka remains under the constant care of a cardiologist, neurologist, and ophthalmologist. Every two weeks, blood tests are performed to monitor her platelet levels. She takes medication to reduce their production, but the symptoms return, as if the disease refuses to give up the space it has occupied.
She is most bothered by recurring, severe headaches and eye problems. The risk of bleeding means that teachers at school remain constantly alert, attentive to every gesture and movement that could signal that something is wrong.
The girl divides her time between home and hospital. Every trip and every return brings with it a tension that cannot be tamed by routine.
The family learns new caution
Her parents work, and her older sister tries to support Paulinka with her presence and tender normality. Fear is not spoken of directly at home, but it hangs in the air like a silent reminder of the fragility of these days. Everyday life is based on vigilance, observing reactions, controlling pain, and watching for any sign that might be significant. It is a time when the whole family is waiting for the results of bone marrow and cerebrospinal fluid tests, hoping that the answer will finally allow them to breathe a sigh of relief.
"I look at her differently than I used to. I check every grimace, every gesture, to see if she's in pain again," admits her mother.
Pauline apart from her illness
The world she loves remains unchanged on the other side of her illness. Painting, dancing, cycling, rollerblading, and her favorite artistic gymnastics remain close to her, like a promise of a time that will return. The family knows that for this return to be possible, help is needed that will allow them to react immediately, without painful waiting.
The funds raised will be used for specialist treatment, medical consultations, and ongoing treatment costs. This support gives Paulinka and her loved ones the strength to move forward, step by step, toward a more peaceful tomorrow.
In a world built on vigilance and waiting, Paulinka clings to small moments that have not yet been taken away. It is in these moments that she hides her desire to return to the colors and movement that the disease has tried to silence.
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PLN 15,902.00(53%)
shortfall to target - PLN 14,098
The collection was supported by: 94 people
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Idiopathic thrombocytosis❗ Paulinka faces pain and difficult diagnosis❗
PLN 15,902.00(53%)
shortfall to target - PLN 14,098
The collection was supported by: 94 people
Highlights
Collection target and updates
Explore the history of
Everyday life filled with fear
The headaches, although brief, were so severe that they could completely disrupt her day. They were accompanied by stomach and leg joint pain, which increased rapidly and without warning. When they first appeared in May 2024, there was no indication of how quickly they would change Paulinka's life.
The blood count results revealed a picture that immediately alarmed the doctors. The platelet count had risen to one million seven hundred thousand.
The girl was taken to a hospital in Wałbrzych, where the abnormalities were confirmed and she was referred to Przylądek Nadziei (Cape of Hope) in Wrocław. There, the diagnostic process began, which continues to this day.
Bone marrow was collected, an MRI scan of the head was performed, morphological tests were carried out, and specialist consultations were held. The MRI scan revealed a narrowing of the right cerebral artery. In addition, the detection of Lyme disease meant that doctors had to rule out the possibility of it affecting the nervous system. Each test therefore raises further questions about the direction of further treatment.
"The hardest part is waiting. You want to know anything, just so you can move forward," says Mom.
Life between home and hospital
Paulinka remains under the constant care of a cardiologist, neurologist, and ophthalmologist. Every two weeks, blood tests are performed to monitor her platelet levels. She takes medication to reduce their production, but the symptoms return, as if the disease refuses to give up the space it has occupied.
She is most bothered by recurring, severe headaches and eye problems. The risk of bleeding means that teachers at school remain constantly alert, attentive to every gesture and movement that could signal that something is wrong.
The girl divides her time between home and hospital. Every trip and every return brings with it a tension that cannot be tamed by routine.
The family learns new caution
Her parents work, and her older sister tries to support Paulinka with her presence and tender normality. Fear is not spoken of directly at home, but it hangs in the air like a silent reminder of the fragility of these days. Everyday life is based on vigilance, observing reactions, controlling pain, and watching for any sign that might be significant. It is a time when the whole family is waiting for the results of bone marrow and cerebrospinal fluid tests, hoping that the answer will finally allow them to breathe a sigh of relief.
"I look at her differently than I used to. I check every grimace, every gesture, to see if she's in pain again," admits her mother.
Pauline apart from her illness
The world she loves remains unchanged on the other side of her illness. Painting, dancing, cycling, rollerblading, and her favorite artistic gymnastics remain close to her, like a promise of a time that will return. The family knows that for this return to be possible, help is needed that will allow them to react immediately, without painful waiting.
The funds raised will be used for specialist treatment, medical consultations, and ongoing treatment costs. This support gives Paulinka and her loved ones the strength to move forward, step by step, toward a more peaceful tomorrow.
In a world built on vigilance and waiting, Paulinka clings to small moments that have not yet been taken away. It is in these moments that she hides her desire to return to the colors and movement that the disease has tried to silence.
Donate 1.5% of your tax
Your e-PIT is the easiest way to settle your taxes. The IRS pre-fills your tax returns, and you can verify, approve or correct them.
Promote the collection
Contributions and words of support
PLN 3,895 (6%)Shortfall: PLN 66,105
PLN 1,000 (1%)Shortfall: PLN 69,000
PLN 1,000 (2%)Shortfall: PLN 49,000
PLN 8,060 (16%)Shortfall: PLN 41,940
PLN 1,005 (3%)Shortfall: PLN 28,995
PLN 1,200 (4%)Shortfall: PLN 28,800
PLN 7,857 (16%)Shortfall: PLN 42,143
