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- Wilms' tumor metastasized to the lungs and diaphragm. Milosz is constantly fighting❗.
Wilms' tumor metastasized to the lungs and diaphragm. Milosz is constantly fighting❗.
Highlights
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Purpose of the collectionUnreimbursed drugs, transportation to medical facilities, consultations with specialists,
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DiagnosisGrade I Wilms' tumor
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Age of the Ward7 years
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Location
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Highlights
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Purpose of the collectionUnreimbursed drugs, transportation to medical facilities, consultations with specialists,
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DiagnosisGrade I Wilms' tumor
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Age7 years
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Location
Update
Good news❗
Recent research has brought cautious relief. A chest CT scan confirmed that the treatment so far is having the desired effect, and there is no need for surgery at this stage. This is important news, which allows us to look with hope at the further course of therapy.
Milosz has completed eight cycles of radiation therapy and has four more cycles of chemotherapy ahead of him. Each successive stage of treatment stresses the body to the limit. After each cycle, he develops a deep exhaustion that requires blood and platelet transfusions to keep the body balanced and ensure the safety of continuing treatment.
Illness is not the only challenge Milosz faces. It is accompanied by selective mutism, making it difficult to communicate freely with loved ones, medical personnel and peers. Despite this, he is able to find his way in the world, which requires him to be brave and trusting in cooperation with adults.
Milosz remains a sensitive, smart boy who has found solace in his passions over the years. He loves board games and building with Legos, which allows him to retain at least a little space of childhood carefreeness at a time when his reality is filled with hospital procedures.
This is a stage where any progress, however small, is of great importance, and the support of others strengthens Milosz where treatment takes away strength. November 21, 2025The light that was supposed to lead on ❗
The family waited for the histopathology result with impatience and faith that it would be the one to bring respite after months of pain and anxiety. They believed that the few words written on the paper would be like a breath of relief, like the beginning of the story of the end of the disease. However, the diagnosis - a stage one Wilms' tumor - proved apparent in its serenity. It offered no solace, because instead of closing a chapter, it became only a harbinger of the road ahead, the burden of which no one could have predicted. During subsequent inspections, however, new disturbing images emerged. The third visit revealed infiltrates on the diaphragm and lesions in both lungs. This was the moment when hope was pierced by another fear, and the road that was supposed to be easier suddenly became much more difficult. Doctors decided to introduce eight cycles of stronger chemotherapy. Additional treatments are still under consideration: radiation therapy, and possibly another surgery. In September, Milosz will undergo a CT scan, which will indicate whether the path taken offers a chance of stopping the disease. August 29, 2025
Explore the history of
That summer, which was covered by the shadow of illness
August 22, 2024 - still summer, and with school already on the doorstep. The last moments of carefree, playfulness in the warm sunshine were about to give way to daily responsibilities. At the time, no one sensed that this natural cycle of transition would become a symbol of a deeper transformation in the life of Milosz's family. No solstice came, however, but a diagnosis that fell suddenly, bringing a chill of uncertainty, fear and unanswered questions. Wilms' tumor, a malignant tumor of the kidney - in an instant, it laid out a new path, completely different from the one a six-year-old should follow.
Surgery and first months of treatment
A few weeks later, Milosz entered the world of hospital corridors and the harsh lights of the operating room. Doctors had to remove the tumor along with his entire left kidney. For the family, it was a moment of constant holding of breath, clasping of hands and thoughts that formed themselves into prayers. Then came the next stage - chemotherapy, spread over four cycles. Each was like walking through fire: painful, exhausting, taking away energy and carelessness. Hours spent under a drip, long nights and persistent side effects became a daily reality whose weight was hard to bear.
Silence between one result and another
August 22, 2024 - still summer, and with school already on the doorstep. The last moments of carefree, playfulness in the warm rays of the sun, which had Today, the family lives in the tension of waiting for the results of histopathology tests. In this silence, between one test and another, time passes more slowly, and each day seems to ask about tomorrow. Proximity becomes the only answer, and the whisper of support becomes the greatest strength. Gazing into the future, Milosz still sees the image of joyful days interrupted, but not taken away forever.
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KRS No.0000581036
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Specific objectiveMilosz Jakubow
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