Thirteen years of Jacob's battle with nervous system cancer❗

Follow-up tests and new information

Follow-up examinations performed six months after radiotherapy showed an increase in the size of the acoustic nerve tumor on the left side by another four millimeters. The second tumor in the head, which had previously remained stable, also grew larger.

The disease remains active

The results obtained indicate that the disease process continues to progress and requires further therapeutic decisions.

There is also space for cautious breathing.

Among difficult news there is also an element of stabilization. The spine and six lesions located there have remained unchanged for six months. and show no further growth.

Decisions will be made in the coming days.

A medical consultation will take place next week. Specialists will analyze the current results and make a decision regarding further treatment. This is a period of uncertainty between diagnosis and the next step, which will determine the further course of treatment. February 24, 2026

Cyber Knife Radiotherapy

Behind Jacob, the next stage of treatment is Cyber Knife radiation therapy, which aimed to stop tumor growth on the auditory nerve. In January 2026, during a check-up It will become clear whether the irradiation had the desired effect and stopped the growth of the lesion. Side effects of these irradiations include loss of balance and multiple - very severe - dizziness, Which make everyday life challenging and ordinary activities a challenge.

Rare disease

Due to the uniqueness of the rare disease that is NF2, the treatment plan proposed by doctors is not always identical. The search for the best treatment path means numerous visits, specialized trips and additional costs, which become another burden. Jacob, supported by his family and doctors, continues to fight relentlessly. Although the disease imposes new limitations, every step, even those bought with effort, takes him further. September 12, 2025

Another fight❗ The tumor is growing again❗.

Despite the overwhelming support, hope and good energy with which Jacob was returning to strength, the disease once again made its presence felt. A recent checkup showed that the tumor on his left auditory nerve had grown by 3 mm. While this doesn't seem like much, in such a delicate structure it can mean a real threat to already strained hearing.   After consultations and undergoing the necessary procedures, Jakub has been qualified for radiation therapy. The treatment will take place at the Institute of Oncology in Gliwice, using the precise Cyber Knife method - radiation designed to stop further tumor growth and stop hearing loss from worsening.

Four more shifts under observation

On follow-up imaging, the doctors also noticed enlargement of four intraspinal tumors. Because of their location, they remain under close observation.

The road that still continues

Diagnosis, treatment, procedures, checks and subsequent decisions are the reality in which Jakub functions on a daily basis. Supported by his loved ones and under the care of the best specialists in Poland, he never stops fighting. Each medical trip is a new stage, another challenge and another step towards hope. July 25, 2025

Silence turned into voices of loved ones

It was a day that Jacob will remember forever. After years of gradually increasing silence, after months of indistinct sounds and attempts to communicate despite barriers - he heard his family's voice again. Thanks to modern hearing aids, the purchase of which became possible thanks to your support, Jakub regained the possibility of contact with the outside world. The emotion was enormous. Not long ago there was no chance for this - lack of funds, technological limitations, lack of hope, which today returned! The specialist at the prosthetics studio suggested that braces be put on the other ear as well. This was the turning point. Sound became clear and voices became understandable. Silence was no longer a barrier. Soon, the whole family will begin a sign language course so that communication will never be interrupted - even when the sound starts to get quiet again. It is thanks to you that this day was possible. Thanks to the people who believed it was worth it. Jacob heard his children, and in that one sound was all that mattered. Thank you. September 16, 2024

New hope

Thanks to your support, Jacob has been able to begin efforts to get a hearing aid - the only way to keep in touch with the world of sound. He has also begun learning sign language to prepare for what may come. That's not all, however. Thanks to the funds raised, it was also possible to start spinal rehabilitation and purchase less aggravating painkillers. For the first time in a long time, Jacob can realistically think about reducing pain, rather than just surviving. There is emotion in his words:

"Until yesterday, I didn't think about braces or physiotherapy. Now I can act. This is amazing. Thank you."

  This is your contribution. Your presence makes a real difference in his daily life. Thank you - and please: stay with us further. Together we can do even more. August 29, 2024